After one more test tomorrow, we meet with the Transplant Surgeon this coming Friday. This is "the big one" - the appointment that will determine whether or not Dennis will go on the active waiting list for a liver transplant.
It's been quite an ordeal for my brave husband. He's got to be the most agreeable person I've ever met, 'cuz I know I sure wouldn't have had the patience to go through all of the poking and prodding he's had to endure these past few months. If all goes well, it will pay off in ways I can't even really grasp just yet - another human being we don't even know will give him the greatest gift possible, and life will return to something closer to normal than we've had in a long time.
None of this, by the way, works like it does on television. You don't just get sick, go to the hospital, get (organ of choice) replaced, go home. There are Social Workers and Coordinators and Financial Coordinators...the list of people on "the team" goes on and on, and each of these people plays an integral part in getting your name on that all-important list. Makes sense, I guess. I mean, this is a one shot deal for the donated organ, and it's often the last chance for the recipient.
Something they definitely don't show on t.v. is the hard truth...sometimes, they say 'no'. If you need a liver/kidney/heart/lung/cornea, you don't necessarily just get one. You won't even be considered UNTIL you qualify financially. Not a chance, no way, you'd best have your ducks in a row or it isn't going to happen. This completely blew me away. I understand that this is a very expensive procedure, that the anti-rejection drugs will cost several thousand dollars per month, and that the organ will have been wasted if given to someone who can't afford it's upkeep, to put it bluntly. But, these are lives we're talking about, and I have a hard time thinking of them in terms of monetary value. Guess that's why I'm not a Financial Coordinator, huh?
This is pretty cool. Good news about this Friday.
ReplyDeleteIt doesn't sound like ramblings but a blog filled with information and insite into what I am sure is just a portion of what you all are endureing. It is such a blessing to hear how Dennis is taking all of this. And you, you must have the strength of Samson. If those doctors get in the way, you could probably take them like Samson did,to get done whatever needed to get done on Dennis' behalf. Grateful for the update.
:^)
Love you all,
Jen and John
Good luck, Girl! I know my uncle is waiting to be put on the "LIST" too! This type of situation just highlights (capital letters, quotated, LARGE BOLD PRINT) the need for a system where it's NOT reduced to "your money or your life." I haven't looked into whether socialized medicine is any better on this point, but just the fact that a person could get medical care when needed would be a VAST improvement! I am pulling for Dennis! Give him a big hug for me (if it's not going to hurt him ;)
ReplyDeleteI will let you know how the memorial for Mom goes. Take care!
Love,
Sue~
P.S. Table Mountain Aviation is one of the places I work, hence the "tablemountainaviation@gmail.com" address.